Friday, 28 January 2011

The Third Day

He's doing well. That's what all the marvelous nurses were saying today.

Apparently, Prof Hanna came in to see Richard last night at 11pm after he had completed another long surgical procedure. I think he asked that Richard be put in his chair as early as 5am to help clear the fluid in his lungs and I believe Richard stayed there until 11am.  He got to go back to bed where I greeted him around noon. He seemed a bit groggy and was desperately trying to cough up his congestion. We're practicing cause he's about 85% there. Angeline, the Sister on duty said, "Don't worry...It will come!"

He was in his chair visiting with a friend when I returned around 5pm and while the friend and I visited Richard dropped off into a deep sleep for about 30 minutes. Nice to see. A bit later another friend arrived and Richard perked up more to reach his cresendo for the day which seems to end at the shift change around 8pm.

If Richard progresses like his neighbor in the ICU who had exactly the same operation by George Hanna last Saturday, he should be graduating to a private room on Monday. That will be wonderful for all concerned, as there he will be reunited with his mobile phone and his texting fingers will get back to their former glory!

Thursday, 27 January 2011

The Second Day

Doctors stated they were all happy with Richard's progress at this mornings daily pow wow. Richard told me he was exhausted though as he hadn't slept at all. He had also been in a bit of pain as they had decreased the epidural so they put it back up to what it was. He's pretty swollen again...something very temporary, apparently.

He sat upright in a chair for over an hour today which is considered excellent therapy for the lungs and chest cavity. He's going to try and top that tomorrow!

When I saw him again this evening from 6 til 8 he'd been bathed and his nurse Edgar said he'd actually slept for an hour. We saw in three visitors who were wonderfully sensitive to Richard's fragility right now but who also added the spice that gave his day a good flavour to go to sleep with.

Wednesday, 26 January 2011

The Morning After

Richard is doing amazingly well! He was having "physio" when I arrived at 10am this morning so I had to wait for a bit to see him. He's connected to a zillion tubes but gave me a big smile and squeezed my hand. Our friend Charl joined us and he awakened further through the visit talking through his oxygen mask and asking very lucid questions and joking that he was bored and ready to leave.

The nurses are pleased with all his signs and the progress he's making, one sign of which was the removal of the oxygen mask to be replaced by the less cumbersome oxygen tube under his nose.

So far he's had five visitors!

Before I forget it, some pertinent info:

Harley Street Clinic
35 Weymouth Street
London W1G 8BJ
0207-935-7700

ICU2 Visiting Hours: 10am-2pm   4-8pm      daily
Direct tel numbers 0207-034-8483 and 8484
no more than two visitors at a time
for the moment very short visits are recommended (5-10 minutes)
as his defenses are down don't visit if you're not feeling 100% Should be obvious but worth mentioning!

This is still a pretty critical period in Richard's recovery and I think the ICU nurses know the right balance regarding the benefits of seeing ones friends and the necessity of rest and avoiding infection so I completely defer to their instructions. That is not to put anyone off who really wants to visit, just to add a note of caution.

Hopefully, in five days when he passes the leak test he'll be moved to a private room and the party can begin!

Thanks for the cascade of notes, prayers, good wishes, helpful thoughts and offers. Truly, truly amazing!!

Tuesday, 25 January 2011

11:15, The Night of the Operation

Professor Hanna just called to say that Richard is now in the ICU and that all went well. He removed all of the lymph glands which might have become cancerous and he doesn't think Richard should have any problems with his recovery. Phew!! He advised I should wait til 10am to see him. All is well.

10:00 pm, The Night of the Operation

What we thought was going to take 10 hours is looking more like 14 hours at the moment. I just spoke to an ICU nurse who says they are waiting for Richard to be wheeled in, probably within the hour. Apparently Professor Hanna is so amazingly thorough, precise and detailed, the procedure takes longer than one might expect. I was assured by a senior vascular surgeon this evening that this is why he has such high success rates so it's a wonderful thing it's taking so long.

An ICU nurse is going to call me when Richard arrives and advises that it will probably be best for me not to come in tonight as he will still be deeply sedated and not able to talk. If I arrive at 10am tomorrow, the start of visiting hours,  he will most likely have been brought 'round and will be in some state fit to communicate. I don't know if I will hear from Prof Hanna by phone this evening as it is growing so late so can just report that when I went in to the hospital around 7pm I was shown to the entrance to the operating theatres by a lovely ICU nurse and she spoke with several of Prof Hanna's team who said Richard would be in til 11pm but didn't indicate that anything was amiss. So I am assuming that everything is OK.

We'll all just keep embracing Richard in our thoughts and know he will be getting some restorative rest in the ICU which will allow him to face the morning's challenges.

If I hear anything significant during the night I'll give an update as soon as possible.

The Operation

Richard is approaching the halfway point of the estimated 10 hour operation as I write this. It is 1:49 pm GMT now and he walked down to the operating theatre a little past 9 this morning. He was well rested, blood pressure perfect, ECG perfect, has had no weight loss and I assume his blood tests all looked very good. The doctors told me to go home to our flat in London and they would call me if needed as after the operation he will be sedated to sleep through the night and won't wake up until tomorrow morning. He will/does have an epidural to control the pain and will be in the Intensive Care ward for up to five days. They hope to get him up and walking around a bit tomorrow to decrease the possibility of a chest infection. On the fourth or fifth day they will do a "leak" test to make sure all the inner crafting is as it should be and then he will be allowed into a private room where he will be able to take liquids and some soft foods. So I imagine that will be this upcoming Saturday or Sunday and he'll probably be there for a further week until all his bodily functions have returned to a somewhat normal state and he is discharged to go home to Whithurst.

Richard was in good spirits but, as one might expect, scared of what he was about to embark upon. But, I think everybody's (including the doctors and nurses!) good wishes, thoughts, prayers, kind words and immeasurable skills have and will be sustaining and helping him (and me!) through his difficult time of unknowns. So "Thank You!" and keep it coming!

Have yet to find out about visiting hours but suspect that most visits might have to wait until he's in his private room next week.

Professor Hanna, his surgeon,  is supposed to call me when the operation is finished so I will update the blog this evening when I know how it all went.

 

Sunday, 9 January 2011

Since the third chemo into the New Year...

It's January 9th and Richard is doing wonderfully!

Since the last post alot has happened. His last chemo session at The Marsden went much as the others and his reactions were much as before, some mild nausea and tiredness, but nothing too dramatic until the morning of December 14th when we had to rush him to hospital with a raging temp of 40c (104 farenheit). We were very fortunate to find a bed available at The Royal Marsden in Sutton (a sister hospital located in a suburban community about 30 minutes southwest of London) and within two hours of leaving Whithurst he was in a lovely private room with an intraveinous drip of antibiotics in his arm to fight the pneumonia that had crept up on him. It was coincidental that he was scheduled to have another endoscopy at the same hospital the next day which, suprisingly, they went ahead with. After three days of loving care, lots of iv's, shots, measuring, monitoring he was released the Friday morning of the 17th and we drove home at a snails pace through a magical winter wonderland of snow and ice feeling so very grateful.

Saturday evening though found us at The Royal Surrey Hospital A&E department in Guilford (about 30 minutes from Whithurst) with a "suspected Deep Vein Thrombosis" in Richards right calf which was 3 to 4 cm larger than his left. A surreal experience but after about four hours we were back home having had blood taken and analyzed and a doctor show me how to inject Richard with a blood thinner until he could have an ultrasound exam on Monday to see what was up in more detail. Long story short, it was not a DVT,  just bleeding into his leg (apparently not so bad!) and it corrected itself, slowly shrinking over the next week.

And then it was Christmas with Richard feeling almost completely restored as he had been taken off the chemo pills a week early because of the pneumonia. We had a wonderful time with Richard's lovely family and friends. Twentythree of us around the table for Christmas lunch! Lots of love and affection savoured and shared.

On New Year's Eve day we had an appointment with David Cunningham, Richard's oncologist, in London. We were both trying to self-soothe our fears of a bad report regarding the cancer and its possible spread as we had not heard the final results of the latest endoscopy and MRI scans. We left elated as Mr. Cunningham told us that the tumour had shrunk from 7 to 4 cm and the lymph nodes near the tumour which were also cancerous had cleared dramatically. so everything was GO for the operation and our goal of a cure!

So now we are preparing for Phase 2 of the journey. The big op with George Hanna at the Harley Street Clinic which is scheduled for Tuesday, January 25th. An 8-10 hour operation with a probable two days in ICU,  then 10-12 days in hospital until normal eating and body functions resume. Then it will most likely be 4-6 weeks or longer, depending on how Richard does, until Phase 3, the final three cycles of chemo to eradicate any cancer cells that might have gone undetected. I figure the whole process might be finished by early to mid June.

Since the last post, along with the doctors and nurses, we've also experienced so many friends wonderful healing intentions with sessions of reiki, group prayer, sacred music, coherence breathing and more. All of it seems to stem from a profound love for Richard and our common humanity. A HUGE heart-felt Thank You from Richard and me!

Onwards and upwards!